Epilepsy Foundation                        Louisiana
 


 

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Louisiana
Faces of Epilepsy

www.facesofepilepsy.org

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Become an Advocate

 

Epilepsy Patient Protection Bill

Support HB 660

Current Louisiana law does not require pharmacies to provide notification when substituting anticonvulsant prescriptions. While small changes in medication type or dosage normally will have little to no effect on patients with other types of medical conditions, substitutions can have a significant impact on patients with epilepsy including serious side effects and breakthrough seizures. It is vital that you and your physician are fully aware of any change in your anticonvulsant medication.

The Epilepsy Foundation of Florida has introduced legislation in the Louisiana House (HB660). The Epilepsy Patient Protection Bill requires a pharmacist to notify the patient and physician when substituting an epilepsy medication. To further protect patients,

If you have experienced a medication substitution, we want to hear your story.

Please contact us at (800) 960-0587 if you have experienced the following:

  • Your prescription has been changed without your knowledge
  • Your medicine has ever looked different when you picked it up.
  • Your pharmacist tells you that the substituted prescription was exactly the same as what you had received before


Louisiana Board of Pharmacy Complaint Form 

 

The Epilepsy Foundation of Louisiana has an active grassroots advocacy network where consumers effect change in the social service delivery system at the local, state, and national levels. Development of services are provided by individual advocacy and systems advocacy.


At the Epilepsy Foundation, we advocate vigorously for people with epilepsy. We believe that having access to medical specialists, the right medications and treatment options makes a tremendous difference in the lives of individuals with epilepsy and their family members. Besides advocating for the best medical care, we offer support in social services, employment, insurance and legal rights.


At the Epilepsy Foundation of Louisiana, we believe that by raising the level of awareness and teaching the general public about epilepsy, we can help reduce the fear and stigma associated with the disorder. If you are interested in advocating for epilepsy, contact us at 1-800-960-0587 (toll free) or info@epilepsylouisiana.org

 

 

What can you do?

Contact your local State Senator or State Representative and ask for their support of Bill HB660.

Our call message to them is as follows:

"Please vote for the Epilepsy bill! I'm a constituent who believes we should ensure the choices of individuals along with the assurance for effective physician/pharmacist collaborative practices on behalf of epilepsy patients and their medication choices.

 

 

 

 

 

 

Find Your Congressional Leaders

 

Louisiana Board of Pharmacy Complaint Form 

 

 Advocacy, Anti-Seizure Medication & You

This year marked the first attempt by the Epilepsy Foundation of Louisiana to support the passing of a House bill designed to protect the rights of Louisiana Residents with epilepsy. The Patient Protection Act was designed to require that all persons taking anti-epileptic medications and their doctors be fully informed before any change is made to the formulation of their medications. We at the Epilepsy Foundation strongly supported this legislation because many people have reported a change in their seizure status when the formulation of their medication has been changed. People from across the state were sought out to begin a grass roots advocacy initiative designed to support this legislation and an advocacy training session this past March. Unfortunately, the Patient Protection Act did not make it out of the Senate Health & Welfare committee this session. We are saddened by this turn of events but we are not giving up the fight. Our efforts to support such legislation and to encourage grass roots advocacy for the rights of individuals with epilepsy in Louisiana will continue in the future (more).

 

 

Report breakthrough seizures that occur after a change from one medication formulation to another to the following: 


Louisiana Board of Pharmacy Complaint Form